From the Perspective of the Child
Leaving the classroom
"sometimes, when I have to leave the classroom, teachers give me a hard time and I have to explain in front of everybody"
Young people with these illnesses tell that their need to use the toilet frequently and unpredictably. Attacks of pain and diarrhea often occur suddenly and with no warning what so ever. Children with Crohn's disease and Ulcerative Colitis must be able to leave the classroom quickly while attracting minimal attention.
Questions about the need to use the toilet in front of classmates will only cause further embarrassment and shame. This short delay may cause a humiliating stooling accident. Actually, when treated like adults, most young person's will respond maturely and will not abuse the privilege of leaving the classroom. In some schools, bathrooms are locked for long periods for security reasons, similarly, in some schools, toilet stalls may not have doors. Any accommodation a school can provide that reduces the anxiety associated with the need to find a toilet quickly will be of incalculable benefit.
Providing a private bathroom in the nurse's or faculty's area is ofthen beneficial.
Coping
"The hardest thing for me to deal with is the fact that I am different from everybody else. Deep down, I don't want to be different ."
Young Crohn's disease and Ulcerative Colitis must cope with attacks of abdominal pain and diarrhea. They may be unable to eat, because eating elicits even more diarrhea and pain. poor dietary intake often slows growth , which may make affected students look younger and smaller than their class mates. These problems often cause them to withdraw and become depressed or angry, especially during the preadolescent or adolescent years.
Treatment can cause problems, too, cortisone - type drugs such as prednisone are effective in controlling ,but not curing ,inflammation caused by Crohn's disease and Ulcerative Colitis.
These drugs, however ,typically cause people to gain weight, to develop a rounded , puffy
Appearance (moon face),to have worsening of acne, and to become moody and restless. This change in appearance may isolate children and teenagers from their classmates who may not be aware of the illness and who may ridicule them .To minimize the disfiguring effects of cortisone-type drugs, intake of salty and high -caloric foods should be curtailed. This, in turn, may further isolate children who can no longer snack on salty foods, such as French fries and potato chips, along with their friends.
Taking medication during school hours
Students with IBD often need to take medications during the school day to help control their diarrhea, pain, and other symptoms .
Schools generally require that these medications be dispensed by the school nurse. It is very desirable that arrangements be made ,if necessary ,to facilitate timely dispensing of drugs to an affected student .In this manner, he or she will not be late for class and stand out, yet again, as being different .
Absence from school
"My teachers don't think I look sick"
Not all young people with Crohn's disease and Ulcerative Colitis are small or have side effects of medication .They may appear to be well superficially ,but may actually feel ill. Many young people with inflammatory bowel diseases may require hospitalization from time to time, sometimes for several weeks. Surgery may be necessary to remove irreversibly diseased intestine or to alleviate a particular complication, such as the accumulation of an abscess cavity (pus pocket) within the abdomen. While in the hospital, children typically appreciate hearing from classmates and teachers and are often able to keep up with school work. Teachers can help enormously by communicating with their pupil's physician or office nurse.
Participation in sport
Young people with these illnesses should participate in sports unless they are in an active state of their disease.
Admittedly, some strenuous sports may cause fatigue or aggravate abdominal and joint pains.
While a modified gym program may be the answer in some circumstances, it is very desirable that the affected child maintains at least some physical activity and not become a "couch potato".
Communication with Parents and
Healthcare Professionals
Teachers often get to know their students very well. Thus, it is not surprising that teachers may be the first to recognize when a child may be experiencing a "flare" of his or her disease. This might well be indicated by more frequent trips to the toilet, decreases in intake during lunch ,declines in school performance as a result of these factors, and ,perhaps, the distraction caused by worsening abdominal pain or medication, Similarly, teachers may be the first to notice signs of a breakdown in coping mechanisms. The development of discipline problems or indication of social isolation from peers might suggest such breakdowns. Early intervention when problems develop is important in treating inflammatory bowel disease. Thus, timely communication with parents, who alert healthcare professionals, can be extremely useful in identifying fare-ups or other complications before they progress too far. additional interventions can then be initiated.
Direct communication with medical personnel is always valuable.